Jon Stamford is a man with a dual interest in Parkinson’s. A neuroscientist by training, he spent more than 20 years heading a small research team looking at dopamine function in the basal ganglia and its relationship to Parkinson’s disease and treatment. Apart from brief spells working in the United States, most of this research was conducted at the same institution – the Royal London Hospital – where James Parkinson had trained.
In 2006, he reluctantly acquired a different perspective when he was himself diagnosed with Parkinson’s in his 40s. However his diagnosis quickly became a source of motivation and, since 2008, he has been an active patient advocate, helping to improve public and scientific understanding of this enigmatic condition.
In 2010 he was a co-founder of PARKINSON’S MOVEMENT, a global patient advocacy group focused on ensuring high level patient representation and involvement in research and development. He remaineddirector of Parkinson’s Movement and workedfor the CURE PARKINSON’S TRUST as a scientific and advocate communications coordinator until his retirement in April 2017.
In 2014 he founded PARKINSON’S INSIDE OUT, a small think tank of clinicians and neuroscientists who also had Parkinson’s. Jon is also a keen supporter and research consultant for SPOTLIGHT YOPD.
Jon is a popular invited speaker on living with Parkinson’s and an active contributor to many advisory and research boards.
He enjoys writing and, from 2012 to 2016, was editor in chief of ON THE MOVE, an online English and foreign language magazine for the global Parkinson’s community. He has also written several scientific books as well as others describing the patient experience of Parkinson’s and for many years wrote a popular weekly blog entitled SLICE OF LIFE.
In his spare time, he is a keen photographer and glassmaker. But, when day is done, he enjoys nothing more than listening to the music of Richard Wagner with a glass of malt whisky.
Jon can best be reached by email at:
J_a_stamford at yahoo dot co dot uk